In brief

Dancers in a hall

Welfare bill: brutal cuts that undermine community and opportunity

The contrast between the Labour government’s plans and the essential support needed to live a good life – a demand which we highlight in this summer’s edition – couldn’t be more stark.

We can all agree on the basics of a good life, so reads our editorial in the latest digital edition of Community Living, an edition that went to press just before the Commons debated the controversial welfare bill – proposing deep cuts to personal independence payments.

The government backed down at the last minute in the face of mass protest, including that from within its own ranks. The welfare bill (its official title is the Universal Credit and Personal Independence Payment Bill) went through in a watered-down version, passing with a majority of 75 – 335 votes to 260.

Labour has said that Pip changes won’t happen until after November next year, after a review by welfare minister Stephen Timms to be conducted with disability groups. So people currently claiming Pip and the health element of universal credit will still get their benefits.

But the cuts to Pip have merely been delayed rather than dropped. And the cut to universal credit for new claimants remains.

Our welfare writer Charlie Callanan unpicks the original plans while columnist Mary O’Hara contrasts the brutal cuts in the USA with what’s happening here in the UK – under a Labour government. How different it all felt a year ago when Labour was voted in.

Reporting and analysis of the plans continued across the news media as we went to press – as did the protests from campaigning charities. James Taylor, executive director at Scope, said the bill would still “strip thousands of pounds in support” from universal credit claimants in the future. Disability Rights UK said the bill is “unworkable and must be scrapped”.

In the latest edition of our digital quarterly, you can read about the impact of good support and about those who continue to fight for the rights of people with learning disabilities and their families – work that’s vital as the welfare bill passes through parliament.

Event held against ban on campus-style homes

Almost 200 people gathered at a conference campaigning to protect the future of congregate living for adults with learning disabilities.

The Care Quality Commission (CQC) issued a guide in 2020, Right Support, Right Care, Right Culture, with the aim of helping autistic people and those with learning disabilities live in the community with more choice, dignity and independence.

However, the guide states that the CQC will not approve new group homes or campus-style accommodation as it believes such homes isolate residents from communities.

Family-led Our Life Our Choice held the event at Woburn House Conference Centre in London this spring.

The event, Learning Disabilities: Challenges and Choices in Care and Accommodation, highlighted how congregate settings can provide high-quality, cost-effective care.

Campaigners said blocking new facilities violated UN and European human rights conventions as it would deny people choice.

Performance course aims to raise profile

A performance-making diploma led by learning disabled and autistic theatre company Access All Areas has won two years of funding from Netflix.

The diploma, delivered with the Royal Central School of Speech and Drama, University of London, is thought to be the world’s only course designed by and for learning disabled and autistic creatives.

It aims to increase representation in TV and film, where people with learning disabilities and autism remain significantly underrepresented, both in front of and behind the camera.

The course builds confidence, communication, and independence, with classes co-led by learning disabled and autistic professionals.

Since its 2013 launch, 79% of graduates have secured professional roles, including work with major broadcasters and theatres.

Mass lobby opposes welfare cuts

Activists from across the UK gathered at parliament recently to confront MPs about disability benefit cuts.

Around 40 MPs attended the mass lobby organised by the Coalition Against Benefit Cuts, Disabled People Against Cuts, WellAdapt and Disability Rights UK, which said: “Never has it been more important to have your voice heard.”

No ‘outsider’: sculptor in line for Turner art prize

The shortlisting of Nnena Kalu for the Turner Prize is an important moment in the relationship between learning-disabled artists and the art world, writes Simon Jarrett.

The Turner Prize judges were wowed by her astoundingly striking large-scale creations, produced in the main from humble VHS tape.

One judge commented “most of all the jury was simply hugely impressed by Kalu’s assured and very beautiful sculptures”.

The importance of this is that Kalu has not been herded into a patronising category of outsider art.

Certain types of artist can be dismissed as interesting but not quite the thing, and may be gently but firmly nudged from the “real” art world.

Viewing the world through the prism of her learning disability and her largely non-verbal communication may indeed have shaped the enormous expressive power of her art.

Nonetheless, Kalu has been assessed and judged purely on her considerable artistic merits.


News briefs

Our new chair of board

Community Living is delighted to announce it has appointed Rhidian Hughes, chief executive of Voluntary Organisations Disability Group, as chair of trustees. He will work alongside board members to support the editorial team and the magazine’s strategic direction.

Day against detention

The Bring People Home from Hospital campaign held a day of action to protest against disabled individuals being held in mental health units. Campaigners delivered a letter to the Department for Health and Social Care calling for an end to the detention of people in psychiatric settings.

Mental health referrals rise

Nearly 30% more children have been referred to mental health services for autism and ADHD than last year, despite these not being mental health issues, according to the Children’s Commissioner.

Abuse on public transport

Disabled people often face abuse, harassment and hostility while using public transport, according to a study by United Response. Findings show low reporting, a lack of support and lasting trauma. The charity called for safety measures and greater accountability in the transport and justice systems.

Finance fears for housing

Over 150 organisations have warned the government
that a supported housing crisis threatens 70,000 homes for vulnerable people in England owing to financial issues.

The National Housing Federation urged the government to allocate £1.6 billion annually to provide safe, affordable housing.

All Update stories are by Saba Salman unless otherwise stated

What’s on our radar…

Social care – but not SEND – omitted from spending plans. Saba Salman reports

  • There was dismay at the government’s failure to include social care in its spending review. Investment in children’s social care, special educational needs and disabilities, employment support, housing and the NHS was welcomed but Scope slammed the chancellor for failing to mention disabled people once. Charities, under the auspices of the Voluntary Organisations Disability Group said it was a ‘missed opportunity’ to address and invest in social care in its
    own right.

  • As the Mental Health Bill works its way through parliament, charities and MPs have been calling for stronger safeguards to ensure individuals will not still be detained under other legal frameworks. The bill proposes ending the detention of people with learning disabilities or autism solely due to their conditions, but the Joint Committee on Human Rights has warned it falls short.

  • False claims about autism have led several UK charities to speak out. Ambitious about Autism condemned misleading statements, including the US government calling autism an “epidemic” and Reform UK leader Nigel Farage claiming that autism and ADHD are “massively overdiagnosed”. The National Autistic Society and Rethink Mental Illness criticised the overdiagnosis claims. Scottish Autism and Autism Alliance UK also warned against exploitative “cures”.

  • The government’s plan to ban overseas recruitment for care home staff sparked outrage. Care England and the National Care Association stressed the move will exacerbate staff shortages. Adult social care has around 131,000 vacancies.