In brief

Fears raised over assisted dying and funding backs work scheme. Saba Salman reports

Harry Cartmill dancing

Self-advocate who never feared speaking out

Catherine Carter
Catherine Carter: “Don’t be scared to take opportunities”. Photo: Thera Trust

Community Living was sad to learn of the death of self-advocate Catherine Carter, aged 51, in November.

Carter, service quality director for Thera North, part of Thera Trust, previously worked at Leeds-based charity Change.

In a statement, Thera Trust said: “You will be missed Catherine… the lessons you have taught us about inclusion will not be forgotten. You made a real difference to many people’s lives.”

Former colleagues Shaun Webster and Dominique Burley said: “Catherine was never afraid to say what was right and what needed to be done to improve the lives of others.

“She’s an inspiration, a friend, a mother and a sister. She will be forever missed and never forgotten.”

Carter won Mencap Activist of the Year 2018. She described her work in Community Living (spring 2024): “Sometimes in life, people need encouragement and support to have their voices heard and that is what my job is all about.”


Last respite holiday firm of its kind closes

The UK’s last remaining provider of holidays with 24-hour care for people with complex disabilities has been forced to close because of financial problems.

In a statement, 60-year-old charity Revitalise said it shut its two holiday centres, in Southport and Chigwell, in November.

It added: “It is with great sadness that Revitalise Respite Holidays must inform you that we are no longer a respite holiday provider.

“Despite every effort to ensure the survival of our respite holiday offering, the financial challenges we faced became insurmountable.

“It remains our lasting hope that policymakers take heed of the critical state of affairs in the social care sector and ensure that respite is properly funded.”

The decision was taken due to a combination of council funding cuts, falling donations and rising running costs.


LDE sets two days for conference

Learning Disability England’s conference in 2025 will take place in person and online.

The online meeting will take place on 26 February and the face-to-face event on 5 March in Manchester.

The theme is Good Lives: Stronger, Louder, Together, based on LDE’s 2024 Good Lives Manifesto (Community Living, summer 2024).


Dancer makes debut at Southbank Centre

Bollywood dancer Harry Cartmill recently made his London debut in a show at the Southbank Centre.

The 17-year old from Birmingham has been dancing since he was a child, perfecting his routines by watching Bollywood dance scenes.

He honed his performance skills under charity Touretteshero’s young artists development programme and appeared at the Southbank Centre as part of Touretteshero’s Biscuit Land Cabaret.

The cabaret event was part of the annual Unlimited festival in September, which showcases performance, dance, comedy, music, poetry and visual art by disabled artists over five days.

Harry says of dancing: “It makes me really happy and excited. It’s the best thing ever.”

The teenager prefers fast music “with lots of drums” and his favourite music to dance to is from Indian films.

The dancer’s idol is Indian actor Hrithik Roshan and his favourite film is the 2001 Hindi family drama Kabhi Khushi Kabhi Gham.


News briefs

Moggy on the move

Members of People First Dorset have published a book in aid of the charity. Not Lost, by William Parmiter, Kerry Martin and Emily Burr (Community Living, autumn 2024), is the story of a cat who travels around Dorchester. The book, about joy and connection, is illustrated by Catherine Owen. It is available from raggyrat.co.uk and Waterstones.

Exploitation risk

Adults living with cognitive impairment are at risk of control and exploitation. A study by Nottingham Rights Lab at the University of Nottingham suggests financial abuse and “mate crime”(by someone posing as a friend) were the most common forms.

Big fundraiser for building

The Grace Eyre charity, founded in 1898, is aiming to raise £1 million to redevelop its Hove base. Formerly a church and a school, the property needs modernisation to create a sustainable, accessible building, including eight independent living flats. Works are due to start this year.

Blamed for wanting support

A report, Blamed Instead of Helped, published by the Autism and Parental Blame Project, by ADASS West Midlands, the University of Birmingham and parents of autistic children, has found that 86% of parents experience blame when asking for support for their child.

Five years of funds awarded

ActionSpace has won five years’ funding from the City Bridge Foundation. This will allow the arts charity, which marked its 40th anniversary last year, to grow its work with learning-disabled people aged 19-30 years.

All Update stories are by Saba Salman unless otherwise stated

What’s on our radar…

Fears raised over assisted dying and funding backs work scheme. Saba Salman reports

Debate over the assisted dying bill will continue after MPs passed legislation to allow some terminally ill adults expected to die within six months to seek help to end their lives. Disability campaigners warned against Labour MP Kim Leadbeater’s private members’ bill.

The government must focus on giving disabled people ‘dignified and equitable lives’ before any a change in the law

Disability Rights UK chief executive Kamran Mallick said the government must focus on giving disabled people “dignified and equitable lives” before any change in the law. The bill will now be scrutinised in various parliamentary stages.

  • The government’s employment white paper, Get Britain Working, had a mixed response. Mencap welcomed the £115 million funding for a new supported employment programme. But Scope stressed Labour’s decision to continue the Tories’ planned cuts to benefits will “leave disabled people financially worse off and further from work”.
  • There were no surprises in the Care Quality Commission’s annual State of Health and Care report. For the Voluntary Organisations Disability Group, it was “a picture of a system under intense and increasing pressure, in many areas failing to meet needs”.
  • Similarly bad news hit the special educational needs sector, with a National Audit Office report stating England’s SEND system is financially unsustainable and in urgent need of reform. There are now 576,000 children with education, health and care plans, a rise of 140% since 2015.
  • The government will publish its 10 Year Health Plan this year, following a public consultation. Change NHS, which invites people to share their views for shaping the NHS, ends in spring.