Page 29 - CL winter 2023 for web
P. 29

arts: books



        Self-advocate and university research assistant Richard Keagan-Bull describes a disturbing trip
        to Auschwitz, and Michael Baron follows the ups and the downs of loving a child with
        profound and multiple disabilities



        ‘I ask that this never happens again’                                        from Poland and the female

                                                                                     assistant who was from Germany
                                                                                     all standing there – together, and I
                                                                                     just ask that we try and learn from
        Don’t Put us Away: Memories of                    Jacek was visiting his family in   our mistakes and that this never
        a Man with Learning Disabilities                Poland at the time and joined me   happens again.
        Richard Keagan-Bull                             for the visit to Auschwitz. It was   It made me quite angry it did,
        Critical Publishing, 2022                       just me, one of the assistants and   and I wanted to kick something I
                                                        Jacek who went.              did, but with a lady being there I
                                                          I found it very moving. Just   felt I shouldn’t do that.
        In this edited extract, Richard                 walking around and looking at   I feel quite angry inside now I do
        Keagan-Bull recounts visiting                   some of the things there.    – about the way they were treated
        Auschwitz. His autobiography                      What shocked me the most   like cattle – like they weren’t worth
        covers many other travels, living                was that everyone had labels   anything. I can see now why
        in a L’Arche community for people                pinned to their prison uniforms   people who lived through that,
        with living disabilities and growing             and I asked Jacek, my friend,   when they see those uniforms, they
        up in the 1970s as people were                   what label I would have had.   feel sad and angry.
        increasingly being given a voice.                  I don’t think I would have   I think in life we should try and
                                                      been here today, nor none of my   understand each other and work
           went to Poland with two other              friends. I think that if I were there   things out and never want war –
           people with learning disabilities          they might have decided to do   just be happy with what we’ve got.
           and three assistants from our              some tests on me in their so-called   It doesn’t matter if you’re black or
           community for our summer                   “hospital room”.               white, if you can speak or if you
       I lidays. I had heard about                      And I was just so pleased that   can’t speak – it’s what you can give
            o
           h
        Auschwitz and really wanted to visit.         there was me from England, Jacek   that counts. n



        An experience like no other                                  Pete’s days and nights at
                                                                     home, the holidays,
                                                                     interactions with the wider
                                                                     family, the schools, the
        The Joy of Knowing Pete        insight into her son’s likes and   travel by train and car, and
        Hazel Morgan                   dislikes, and his real appreciation   the last days.
        YouCaxton Publications, 2022   of the changing world about him.   The family coped and
        Review by Michael Baron         An example is Pete’s hatred of   they cared, and it was
                                       snow, and how it interfered with his   within the bosom of a
                                       delight in walking. His satisfaction   loving church. We may
                 azel Morgan writes of   with life is shown in the progression   well wonder at the role
                 The Joy Of Knowing    from first days in school to his last   of the church in general
                 Pete. That’s her late    weeks in the Chantry, a Sue Ryder   but, in the Morgans’ case,
                 son Pete, born with   specialist neurological care centre in   not this church. It was
       HDown syndrome                  Ipswich. There he received    an important part of
        and profound and multiple      wonderful care in what was, apart   Pete’s story.
        learning disabilities.         when he was from living with his   His parents could judge this – as
          “Do not despair,” seems to be her   family, his final home.  with so much else – from the
        message, for Pete is a joy      This book is permeated with   non-verbal Pete. The subtitle of
        throughout his short 18-year life.    lessons on how parents and siblings  Morgan’s book is: “Much was said,
           Morgan tells it all in a book   live with disability. Morgan does   yet no words spoken.”
        about love and sharing the good   not write like the Oxford graduate   His death touched so many that
        and the bad – a memoir of the ups   she is but tells us straight how it is   at the end, the sad event filled the
        and the downs of loving a child   an experience like no other.    pews. This is a fine memoir which
        with profound disabilities.     Parents and siblings will read   repays the reader a hundred fold.
          Read Morgan’s book for her   how the Morgan family coped;    Pete we shall remember. n

        Community Living  winter 2023  vol 36 no 2                                                             29
   24   25   26   27   28   29   30   31   32