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        Jan Walmsley: who really benefits

        from contraception?





        The history of contraception over the years shows that
        women’s sexual health, reproductive rights and protection
        from abuse have never been priorities






            t’s great that people with                  sterilisation but there is no   taken advantage of. We do not
            learning disabilities now                   doubt it was widely practised.   know how many women are taking
            officially have rights to a                   I once interviewed a couple   contraception for these reasons
            family and relationships.                   who in 1970 had asked their GP   – we should.
             Historically, this has                      if their daughter, then 20, could   What’s the message here?
            been a fraught issue.                        be sterilised. She never forgave   At no time has the sexual health
      I The policy motivator                             them for taking away her ability   of women with learning disabilities
        until the mid-20th century                       to have kids.               been the primary concern.
        was fear that the “feeble                          But, they asked, what were   Many would prefer it if women
        minded” would have more                          they to do? She liked sex,    with learning disabilities do not
        children than others, leading                    and they did not want the   become mothers. But the issue is
        to “a terrible danger to the                     responsibility for helping her   bigger than a neglect of women’s
        race”, as Winston Churchill                      bring up children.          desire to become parents.
        wrote to prime minister                            In Know Me As I Am, a 1990   It extends to a failure to protect
        HH Asquith in 1910.                              anthology by people with    from abuse, from sexually
          At the time, there were two                    learning disabilities, one   transmitted disease and from
        ways to prevent people from                       contributor said: “People like   unwanted (by the woman herself)
        having children – keeping the                     us don’t have babies. No one at   pregnancies. It’s a failure to provide
        sexes apart or sterilisation.   Fitting a long-acting   the centre does apart from   support for women to have
          In the UK, segregation was   contraceptive   staff. Some people have their   whatever safe and physically and
        adopted; involuntary sterilisation   implant: women   stomachs taken out.”   emotionally rewarding sexual
                                       with learning
        was never formally sanctioned. In   disabilities are far   Today, women with learning   relationships they choose. It’s a
        institutions, men and women met   more likely to have   disabilities are nearly four times as   failure to help draw boundaries to
        only when supervised by staff.   such devices fitted   likely to use long-acting reversible   protect women from exploitation.
          Many people remained outside   than others  contraception (LARC) as other   Related to this is the lack of
        these institutions. What of them?             women – a rate of 46% versus 12%,   support for well-woman issues –
          I was shocked to find government            according to Public Health England.  puberty, menstruation and
        forms from the 1930s that asked                 What little research has been   menopause – to say nothing of
        officials checking up on those living         done indicates these women are   poor diagnosis and treatment for
        with families: “Is it considered that         prescribed LARC (or other      gynaecological conditions and
        the control available would suffice           non-barrier methods such as the   female-specific cancers.
        to prevent the defective from                 pill) at a younger age than others,   The manager of a residential
        procreating children?” If the answer          stay on them for longer and,   home once told me she was
        was no, placing them in an                    astonishingly, remain on them   shocked that residents were not
        institution would be considered.              even if not sexually active. Reasons   allowed out of their rooms between
          The pill was a game changer.                offered include “to manage     10pm and 7am. Nowhere was this
        Institution staff made sure women             menstruation” or in case they are   written down – it’s just what
        took it (many patients were probably                                         happened until she changed it.
                                                                                      When I asked about overnight
        unaware what it was for) and could
      Jacqui Brown/Flickr CC BY SA 2.0  relationships between patients.   Related to this is the lack of support for   that families had a lot of interest and
        feel permissive about heterosexual
                                                                                     visitors, she said yes – then added
                                                                                     staff would have to check with them.
          However, people in the
                                       well-woman issues – to say nothing of
                                                                                      History tells us that looking at the
        community could not be relied
                                       poor diagnosis and treatment for
                                                                                     policy is not enough. We need to
        upon to take the pill. The
                                       female-specific conditions and cancers
        government refused to officially
                                                                                     look beyond what people say they do
        countenance involuntary
        Community Living  winter 2023  vol 36 no 2                                   and at what actually happens. n  23
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