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IN THIS ISSUE


                                3  Comment It took a lethal pandemic to   16   When epidemics bring too many
                                   get routine injustice into the headlines   deaths People with learning disabilities
                                                                              died at high rates in both the Covid
                                                                              and the Spanish flu pandemics
                                6  Letters A chance to improve inpatient
                                   unit inspections; actor Terry Smith
                                   – a sad loss; farewell, Rose Trustam;   18   We should be proud of who we are
                                   vaccine victory; children in lockdown      Baroness Jane Campbell talks about
                                                                              exclusion from work and disability
                                                                              activism as well as priorities for today
         Challenging charging
            policies, page 7    7   Welfare rights: deductions made from
                                   benefits Money can be taken out of
                                   payments for a variety of reasons but   20   Impossible to improve: institutions
                                   amounts are capped                         must go The assessment and treatment
                                                                              model of care is harmful and creates
                                                                              the conditions for human rights abuses
                                8  Legal: tackling unfair charging policies
                                   A judicial review found a council
                                   discriminated in how it assessed a     22   Hate crime – don’t be a bystander
                                   person with severe disabilities            Efforts are being made to stamp out
                                                                              hate crime, which affects the majority
                                                                              of people with a learning disability
                                10   Obituary: Rosemary Trustam: a
        Obituary: Rose Trustam,
              page 10              remarkable, driven advocate The life
                                   of a renowned fighter for the rights of   23   Taking steps against bullying
                                   people with learning disabilities          Anti-Bullying Week celebrated unity
                                                                              and difference, kicking off with
                                                                              Odd Socks Day
                                11   Talking online closes the distance
                                   Being able to meet online during
                                   lockdown has brought many people       24   Power and prejudice: the deep roots
                                   and places nearer                          of failure in medical ethics How did the
                                                                              medical profession’s antipathy towards
                                                                              learning disability arise – and why?
                                12   The persistent stupidity of intellectuals
        Baroness Jane Campbell,    Why have the well educated for so
               page 18             long held the disabled in contempt and  27   Reviews The Crown reveals the royal
                                   why does eugenics refuse to die?           family’s shameful secrecy and a radio
                                                                              series follows a young couple living an
                                                                              ordinary life
                                14   A new role to encourage employers
    Roger W Haworth: protest; poster: Wellcome Collection; royals: National Digital Archives of Poland
                                   Sara Pickard looks forward to her
                                   government role promoting people       28   How Emmerdale got it so very wrong
                                   with learning disabilities to employers    The ITV soap opera has caused outrage
                                                                              in the Down syndrome community and
                                                                              raised some concerning ethical issues
                                15   Course shows appetite for learning
                                   A course for staff shows there is
         Deep roots of medical     pent-up demand for alternatives to     30   History: from people last to People
         ethics failure, page 24   vocational education                       First Abuse in an Oregon institution led
                                                                              to a self-advocacy movement that
                                                                              went global













           The royal family’s
       shameful secrecy, page 27

       www.cl-initiatives.co.uk                                              Community Living  Vol 34 No 3  |  Spring 2021  5
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