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emotional wellbeing

       men in particular illustrate well the   the community with the men and their   the boundaries of professionalism that
       tensions between policy intended to   support workers, I would regularly see   have become the defining means by which
       equip young people with learning    how they would try to take a support   health and social care staff are expected
       disabilities with all the opportunities   worker’s hand.                 to relate to the people they support.
       afforded to others of a similar age and the   At an employment training service at a   Just as I felt conflicted, there were times
       reality that, as people with learning   local farm I regularly attended with two of   when staff also appeared to struggle with
       disabilities, they could at times be highly   the men, they would attempt to engage   how to respond to requests to hold hands
       vulnerable and reliant on others around   their support workers in hugs. Generally,   and for embraces from those they
       them for support. The three men – Mark   when this happened, I would watch as   supported. When faced with the
       Whyatt, Joey Tammer and Sam Treadwell*  workers quickly pulled their hands away   vulnerability of those in front of them,
       – were in their 20s and living together in   or refused to reciprocate in a hug.   workers would sometimes momentarily
       supported accommodation.                                                 transgress professional boundaries and
        I saw how the three young men often                                     respond to calls for physical contact.
       struggled to achieve independence and   “                                However, these responses were not enough
                                                  The young men tried to
       community inclusion. So much of this                                     to have a significant impact on how such
       appeared to be down to the limits their   emotionally engage in a        interactions were perceived more generally.
       condition placed on them. Without staff   physical sense but support       The need to create distinct, professional
       support, they tended to be unable to do   workers would quickly pull     boundaries between staff and people in
       many things, such as cleaning, paying                                    receipt of support has a logical basis. It
       household bills, going to the shops and    their hands away              enables support to be transparent and
       organising general aspects of life.   The three men also attempted to ”  accountable, ensuring that vulnerable
        I also saw tensions and conflict develop                                people are not exploited or, at worst,
       between the young men and their support                                  seriously abused. Furthermore, placing the
       workers, who would tirelessly attempt to   engage with me in these physical ways. I   person at the centre of support relates to
       get them to engage in domestic duties.   recall one day at the employment training   concerns about paternalism and its limiting
       These activities were not always of   service when one of them leant his head   effect on self-empowerment, autonomy
       interest to the men but staff saw them as   against my shoulder. I considered trying to  and the right to be active citizens. As such,
       important markers of living a normal life.   ignore this. I felt conflicted as to how to   staff are discouraged from engaging
        Elsewhere, there was at times a focus   respond: on one hand, I was aware these   emotionally with people they support.
       on the young men getting jobs in the   kinds of interactions were not generally   These concerns are valid and important,
       community, but these aspirations were   permitted yet, on the other, I felt   particularly in the context of learning
       not realised as their needs relating to   compelled to respond to what felt like a   disability care in which many people were
       their learning disabilities meant they   strong need for emotional connection and   – and still are – unnecessarily detained in
       could not perform tasks the roles   reassurance from another human being. I   segregated and poorly maintained
       required. Unfortunately too, because they   responded and put my arm around him.   settings. Yet, in focusing so much on
       were considered to be working towards   At this point, a staff member walked   transactional concepts of support and
       independence, the funded hours of   past, saw this and, after telling the young   individual autonomy, we might
       support provided were not enough to allow  man he knew he should not be doing that,  inadvertently be ignoring an inherent
       some hours to be allocated to support   turned to me and warned me that he   human need to feel connected to others.
                                                                                  For people with learning disabilities,
       them in carrying out tasks required in a job.  might “get the wrong idea”.  who tend to have limited social networks,
      “    The men struggled to            Ability versus aspiration            the ability to engage in an emotional

                                           In the examples above, I have tried to
                                                                                sense with the people they see most days
                                                                                – their support staff – is arguably crucial.
                                           illustrate the tension between the policy
        achieve independence and
          inclusion. Without staff         goals of independence and community   You could argue that no amount of
                                           living and the problems people with
                                                                                independent freedom is meaningful if you
         support, they were unable         learning disabilities can experience in   do not also have access to the kinds of
                                                                                intimate relations with others that make
                                           achieving these.
             to do many things      ”      and, for some, physical impairments   *Names have been changed
                                             Quite often, I found people’s intellectual  life emotionally meaningful. n
                                           very difficult if not impossible for them to
       Social and emotional connection     appeared so embodied that it would be   Dr Carys Banks is an anthropologist at the
       In addition to trying to shape people as   achieve these aspirations. In contrast, it   University of Surrey. Her work explores
       responsible and engaged citizens, policy   was emotional connections that people   relations of care between people with
       imperatives shaped social relations   with learning disabilities tended to seek   learning disabilities and staff supporting
       between individuals with learning   from those around them, who were     them. She was the 2016 recipient of the
       disabilities and their support workers. This  mainly support workers.    Radcliffe Brown/Sutasoma award from
       was played out as the young men tried to                                 the Royal Anthropological Institute
       engage with workers as friends, asking   Boundaries become barriers      Further reading
       them to go for coffee or to the cinema.   At an organisational level, calls by the   Banks C (2018) Are People with Learning
        Perhaps more affecting was when I saw   young men for emotional connectedness   Disabilities Really Being Empowered?: an
       how the young men attempted to engage   with support workers were viewed as   Ethnography Exploring Experiences of
       emotionally with their support workers in   inappropriate, particularly when manifested   Empowerment Policies in UK Social Care Support.
       a physical sense. When out and about in   physically. This was because they transgress   PhD thesis. http://tinyurl.com/y4zhofmy

       www.cl-initiatives.co.uk                                            Community Living  Vol 33 No 1  |  Autumn 2019  11
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